Caring for Carcinoid Foundation

The Neuroendocrine Tumor Research Foundation (NETRF), previously known as the Caring for Carcinoid Foundation (CFCF), is a nonprofit corporation organized under the laws of Massachusetts in order to support neuroendocrine and carcinoid cancer research in the public interest. The mission of NETRF is to fund research to discover cures and more effective treatments for carcinoid, pancreatic, and related neuroendocrine cancers.The specific objectives and purposes of the Foundation are to support doctors and scientists who are researching the causes of carcinoid[1] and related neuroendocrine tumors and developing treatments; and to inform the public about research and treatments.[2] The National Health Information Center Health Information Resource Database[3] describes it as "the leading 501(c)(3) nonprofit dedicated to discovering a cure for carcinoid cancer".[4] The Foundation is accredited by the Better Business Bureau.[5]

The Foundation was founded in 2004 by Nancy Lindholm (formerly Nancy O'Hagan), who is herself a carcinoid patient.[6][7] It is located in Boston.[8] On November 10, 2010 the Foundation celebrated the first annual Worldwide Neuroendocrine Tumor (NET) Cancer Awareness Day by launching their new website, which provides comprehensive information for family and friends.[9] From time to time the Foundation makes grants available jointly with the American Association for Cancer Research.[10] On other occasions the Foundation acts in conjunction with other grant providers[11] or as the sole grant provider.[12][13] In 2015, the organization officially changed its name to the Neuroendocrine Tumor Research Foundation and its website to www.netrf.org.


References

  1. ↑ "Carcinoid syndrome: MedlinePlus Medical Encyclopedia". Nlm.nih.gov. May 16, 2008. Retrieved November 10, 2011.
  2. ↑ "The Caring for Carcinoid Foundation Celebrates Worldwide Neuroendocrine Tumor Cancer Awareness Day with... – BOSTON, Nov. 10, 2010 /PRNewswire-USNewswire/". Massachusetts: Prnewswire.com. Retrieved November 10, 2011.
  3. ↑ "National Health Information Center". Health.gov. Retrieved November 10, 2011.
  4. ↑ Archived November 7, 2008, at the Wayback Machine.
  5. ↑ "Charity Review of Caring for Carcinoid Foundation". Bbb.org. December 31, 2009. Retrieved November 10, 2011.
  6. ↑ "Founder Nancy Lindholm | Caring for Carcinoid Foundation". Caringforcarcinoid.org. Archived from the original on November 14, 2011. Retrieved November 10, 2011.
  7. ↑ Archived October 31, 2010, at the Wayback Machine.
  8. ↑ "Frequently Asked Questions | Caring for Carcinoid Foundation". Caringforcarcinoid.org. Archived from the original on November 14, 2011. Retrieved November 10, 2011.
  9. ↑ http://www.centredaily.com/2010/11/10/2331580/the-caring-for-carcinoid-foundation.html[]
  10. ↑ "Archived copy". Archived from the original on September 1, 2010. Retrieved 2010-11-12.
  11. ↑ https://web.archive.org/web/20080516031934/http://www.dana-farber.org/abo/news/press/drug-combination-shows-promise-for-treatment-of-advanced-neuroendocrine-tumors.html. Archived from the original on May 16, 2008. Retrieved November 14, 2010. Missing or empty |title= (help)
  12. ↑ "Carcinoid Tumor Research Grant Of $250,000 Received By Researcher At M. D. Anderson Cancer Center". Medicalnewstoday.com. Retrieved November 10, 2011.
  13. ↑ "Tufts-NEMC Physician-Researcher Andrew Leiter, MD, PhD, Is Awarded 250,000 Dollars Carcinoid Tumor Research Grant". Medicalnewstoday.com. Retrieved November 10, 2011.
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